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[-] DillyDaily@lemmy.world 2 points 17 hours ago

My mum and I had a shared period calendar when I was a young teen and still getting used to tracking my cycle, she hung the calendar and pen in the bathroom to model how I could track my cycle in a diary as I got older.

We invented a key/symbol system so the calendar wasn't intrusive for my brother and father to see, and one of the symbols we used for the luteal phase was a sort of hourglass ⏳, it was originally my mums poor doodle/sketch of a panty liner to indicate "you might spot a bit this week" but it looked like an hourglass so I joked that symbol meant I'm "just waiting for the storm to arrive".

It was the perfect symbol for me, because when people ask about the tattoo, and I don't want to go into the real reason I say "it's a visual reminder" and if they ask more I can say "it's an hourglass, because there's only a little time LEFT, it's on my left hand - I get my lefts and rights mixed up. Plus it reminds me to put my watch back on after I get dressed, so it helps remind me of a lot of different things"

[-] DillyDaily@lemmy.world 13 points 4 days ago

Yuuuup, I ended up getting a tattoo on my wrist that is essentially a personal period joke.

At one stage it was crucial for my survival, it was a kind of grounding token to snap me out of hormonal suicidal insanity when my PMS was at its worst. Something I'd see that would bluntly remind me "it's not you, it's your hormones, you don't actually want this"

When I say the urge came and went zero to sixty back to zero in 30 seconds flat, sometimes that was an understatement. I really struggled because in addition to suicidal ideation during PMS, I had undiagnosed and untreated ADHD, which often gets worse with PMS thanks to the way oestrogen and progesterone play off each other.

Guess who's got major impulsively issues. Guess what two symptoms really shouldn't be combined.

I have zero desire to kill myself.

But my hormones seemed desperate to try and make me do it every month, especially as a teen.

It didn't help that I had endometriosis and at 17 developed a uterine prolapse, on top of a rectal prolapse I'd had since I was 12. I was in agony when I was on my period, so sometimes the desire to make the pain stop overlapped with the suicidal ideation. That sucked. Hard to reason your way out of physical pain.

I've had a hysterectomy (from 17-24 my uterus just kept trying to make its own escape anyway despite attempts to sew it in place) and no longer suffer menstrual dysphoria because it turns out that was gender dysphoria not true PMDD. But I still get suicidal ideation as part of PMS, fortunately my ADHD is much better managed so now my tattoo is less a suicide detterant and just a reminder that I still have ovaries (sometimes I genuinely forget, and it takes me a few days to work out why I'm bloated and irritable and why I'm anxious about my sore boobs)

[-] DillyDaily@lemmy.world 22 points 5 days ago

As someone chronically Ill, I feel this so hard.

Every minute that I'm not at work I'm dedicating to making sure I'm likely to be well enough for work tomorrow.

I don't do anything after work without asking "how will this impact my health tomorrow?" and that includes things like not being able to sweep my own floor because I know I need to sweep at work and the nerve damage in my arms won't let me sweep twice in one day without keeping me up all night in pain, and if I don't get enough sleep, I'll get a migraine and won't be able to physically see anything.

Most of my days off are spent in agony trying to restore myself and desperately trying to reset my house and home life so I can keep up with work, without overdoing it on Sunday and making myself sick for Monday.

So yeah, on the one day a month where I wake up for work and I don't throw up or almost shit myself, and my heart rate is doing what it's supposed to do, and I can see and hear and feel my feet... The temptation to "call in healthy", so I can actually have a day off to enjoy myself for the first time in over a month is really hard to ignore.

I actually did that this week because Wednesday was my birthday, I went to work, it was a "bad workable day" (vs a "good workable day" or a "bad unworkable day") and Thursday I woke up feeling really good, I only had a 2 hour shift and it was just admin so I took my first sick day in 6 months and used it to do all my linens and towel laundry. It felt like a proper day off because I was healthy enough to get stuff done for myself, without being in pain or having to stop to run to the bathroom or let my heart calm down, or give up on folding because I can't feel my arms.

I can't do that every time I want or even need to though. My bank account is really good at forcing me to go to work, healthy, half dead, or heaving. Chronic illness is expensive, and some days trying to keep up with work feels like it costs my health more than not working. but sadly not working is not an option for me, because I'm capable of work, so I must. (and continue to push my gov for universal basic income)

For context as to how working while disabled messes you up. I got hit by a truck on the way to work last year, I got to the office and used their first aid kit to patch myself up. Booked a doctors appointment, told my boss I'd be leaving early, then kept working until my appointment.

My boss was fine with this, and then someone on reddit posted a photo of the crash and my boss saw, they realised when I said "I was hit by a truck" what I meant was "I was hit by a truck"

When asked how I was feeling, and reporting "no different to usual" my boss sent me to the ER because they thought I had a concussion and was acting confused. ER checked me out, dislocated shoulder and wrist, soft tissue damage here and there, but otherwise nothing major or serious or nothing I don't already deal with on a daily basis. I went back to finish my shift and my boss asked what I was doing working after I'd been hit by a truck.

I feel exactly the same level of pain today as I do every other day. If I take today off because this level of pain is apparently unworkable, it's a slippery slope, eventually I'm going to have to come back to work despite being in this exact same level of pain. This is my baseline, now I can truly compare it to being hit by a truck.

I used to be on a pension, I wanted to work because I wanted purpose in the neo-liberal hell scape of my society. but my mental health was too shot because of this deep rooted idea that I deserved rest just for being in any level of pain that was out of the ordinary, and subconsciously I would talk myself out of doing anything because I deeply believed I shouldn't have to.

But I don't have that luxury, my ordinary will always be "hit by a truck" level, so right now I either learn how to consistently work through it, or drop dead broke and homeless.

[-] DillyDaily@lemmy.world 3 points 6 days ago

In Australia Google maps has issues with routing cyclists on 80km busy truck transit roads that have no bike lanes, footpaths or shoulders. You'll regularly get stuck behind lost uber eats cyclists whose map took them through a motor vehicle only underpass.

The other day google maps decided to reroute me from a quiet, wide street with no bike lane that was otherwise perfectly safe, and tried to send me through a nightsoil alley, down a heritage stock run that was paved with cobblestones and crossed over a storm drain 4 times in a zig zag.

Yeah, "safer" because there's no cars I guess, but not suitable for bikes at all.

[-] DillyDaily@lemmy.world 0 points 1 week ago

I have galactorrhea, pumping rooms aren't a natural maternal family matter, for me, it's a medical procedure.

Privacy is a lactating person's choice, and right. public feeding is a choice that I agree needs to be destigmatised. Personally I'm not comfortable with public pumping, because I see my breast milk as medical not nutritional, so I choose privacy for myself.

It's also difficult, it's stressful, it's uncomfortable. Having comfort, focus, peace and quiet, it's important.

I don't even have a uterus, so getting my leaky chest out in public is even further from being socially acceptable. I've lost count of how many times I've had mastitis because I have not been able to expell in a timely manner. Partly that was because I was embarrassed by my condition and didn't stand up for myself and my need for access to a pumping room at work, and part of it was because my employers didn't understand my need for a private room, they pointed out that it's never been a problem for mothers in our office to whip a tit out when baby was hungry, and/or that my need was different because the reason I I had breast milk at all was different.

No one gets to expect me to be comfortable with nudity. My breast milk, my choice if I have privacy or not.

I used to do it in the bathroom because I didn't have anywhere else, but that was a gamble, do I let myself get an infection because I'm letting my ducts clog, or do I risk an infection by pumping milk in the toilets.

[-] DillyDaily@lemmy.world 22 points 3 weeks ago* (last edited 3 weeks ago)

Send the email, then call me to say "hey I sent you an email that I really need you to read and respond to urgently, I'll let you go so you can focus while reading, talk later"

For one of my 3 jobs, I don't have regular work hours, I'm employed just 5 hours a week, on call, for IT support for a little non for profit.

My contract, my email signature, my numerous discussions with the team all state "if you require a response within the same business day, please phone me to alert me to the issue"

I check my email once a day, I don't have time to be checking it several times a day when I'm only paid for 5 hours work, I need to conserve those hours for maintenance and support I'm not about wasting anybody's time.

So if someone happens to email me after I've already checked my inbox for that day, I won't see it until tomorrow. Hence, phone me, I want to work, I just need a way to alert myself that work is available for me, a text message will also suffice.

I realise this is asking someone to change the way they operate to make my job easier. But the number of times I check my email at 1pm, and there's zero tickets, so I turn off my computer because I'm not going to sit and watch an empty inbox for my free time.

Then the next day I check my email and I have 20 emails all from the same person from about 3-5pm all saying "hey I have an issue" "hey following up this is kind of urgent" "hey, are you even checking your emails?"...no obviously I'm not, it would have saved you so much effort to send 1 text after 1 email as I requested than to send 20 emails, and I would have actually gotten the text in time.

Also half the time the issue needs to be fixed with a phone call anyway because it's something simple like "Microsoft Word is missing"... because the program was unpinned from the taskbar and the staff member just needs help remembering the start menu exists. Most of my support resolutions are the equivalent of describing the buttons on the TV remote to your grandmother over the phone. (lots of older, less tech literate folk working in NFP sector)

[-] DillyDaily@lemmy.world 13 points 1 month ago* (last edited 1 month ago)

Accessibility.

We will never get rid of the analogue clocks from our school, we're an adult education and alternative model highschool qualifications centre.

We primarily teach adults with no to low English, adults and teens with disabilities, and adults and teens refered via corrections services.

There is a significant level of illiteracy within numeracy, and for some of our students, it's not a failing of the education system, it's just a fact of life given their specific circumstances (eg, acquired brain injuries are common among our students)

Some students can learn to tell time on an analogue clock even if they didn't know before.

But even my students who will never in their life be able to fully and independently remember and recall their numbers can tell the time with an analogue clock.

I tell my students "we will take lunch at 12pm, so if you look at the clock and the arms look like this /imitates a clock/ we will go to lunch"

And now I avoid 40 questions of "when's lunch?" because you don't need to tell time to see time with an analogue clock, they can physically watch the hands move, getting closer to the shape they recognise as lunch time.

And my other students can just read the time, from the clock, and not feel infantalised by having a disability friendly task clock like they've done at other centres I work at - they've had a digital clock for students who can tell time, and a task clock as the accessible clock. But a well designed face on an analogue clock can do both.

I myself have time blindness due to a neurological/CRD issue, so analogue clocks, and analogue timers are an accessibility tool for me as well, as the teacher.

[-] DillyDaily@lemmy.world 0 points 1 month ago

At the end of the day, alcoholism, depression, and obesity, they are unhealthy states of being.

They are not something people choose, and while there are treatments, it's not something everyone can control.

That doesn't mean we should simply accept this state of being. People living with depression deserve better, people living with alcoholism deserve better than for us to say "it's out of their control, they can't help it, so we shouldn't judge, let them be" when what they need is better support and better treatment options.

Likewise, obese people deserve better than "eat less, move more, fatty!" but they also deserve more than "all bodies are beautiful, just let us be"

I say this as someone who was a fat kid, and a fat teen, and a fat adult. I had a BMI of 50 for a most of my life. In my mid 30s, I got it down to 28, and still going.

So I say all of this is as someone else who was fat, obese, and morbidly obese. Obesity should be viewed the same way we view depression and anxiety, though depression and anxiety also need some better PR.

Being obese may not not always be a choice, but the the ultimate end goal of how we view obesity as a state of being is to find ways we can all manage our weight. Because obesity is not healthy, for those who can't easily control their weight, life sucks, they are patients in need of treatment, not morally failing people, but also not "perfect plus sized activists who are healthy at every size"

Because while bodies and sizes vary and we can do healthy things at every size. Obesity is inherently unhealthy. Obviously being bullied won't solve anything, but neither will society politely ignoring how hard it is to live a full life while suffering from obesity.

Being black isn't an inherent health issue. It genuinely is just a different state of being. 99% of problems unique to black people are social issues, not medical issues... So the comparison between obesity and substance abuse issues is more helpful than trying to compare being obese to being BIPOC.

[-] DillyDaily@lemmy.world 4 points 1 month ago

That's alright, there will only be a handful of gen alpha even eligible to vote in a 2029 election, since they were born 2010-not even born yet

[-] DillyDaily@lemmy.world 1 points 1 month ago

Yup, thyroid, adrenals, and gonads have been checked, both with blood work and untrasound.

I have dysautonomia due to a brain stem herniation, and temperature regulation is effected by that, but it's just been so weird that the way this symptom effects me was decades of not feeling the cold, then suddenly now I'm not feeling the heat.

I know which one I'd choose if I got to pick.... and it's the one where I don't need to go to a wound nurse for frost nip in February.

[-] DillyDaily@lemmy.world 6 points 2 months ago

I was a year round shorts guy, genuinely didn't feel the cold. Last year I suddenly became a year round thermal stockings, skivee, thermal gloves, jumper and woollen pants guy.

I can't get warm. It's like I'm catching up on 30+ years of never feeling the cold by feeling the cold all the time.

[-] DillyDaily@lemmy.world 5 points 2 months ago* (last edited 2 months ago)

Some people think cilantro tastes awful, and I don't understand those people on that point either.

You don't understand that some people have a genetic mutation that causes their taste buds to be more sensitive to the flavour compounds in cilantro, including Aldehyde?

What is hard to understand?

Aldehydes are a flavour compound in cilantro that in small doses gives a fresh, light and vibrant taste. Aldehydes are also present in the soap making process, various other cleaning agents, as well as being released by certain insects.

If you taste a lot of these specific Aldehydes, you will taste soap. But cilantro doesn't contain enough Aldehyde for most people to notice any fowl tastes.

That is, unless you are an X-man with mutant taste buds.

Their taste buds pick up on the Aldehydes, and therefore cilantrotastes like soapy stink bugs.

It doesn't mean I don't accept them for who they are.

[...]

looks gross.

You don't get to claim you accept people for who they are, then call them or aspects of their appearance "gross".

If you truly believed that people can have preferences we don't agree with, then you would keep your mouth shut when you see a piercing you don't like, but that clearly they like having.

Accepting people starts with learning that if you can't say anything nice, don't say anything at all.

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DillyDaily

joined 11 months ago