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Teen with Incredibly Rare Genetic Condition is Cured in World First By British Doctors
(www.goodnewsnetwork.org)
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this post was submitted on 13 Apr 2024
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This is a highly misleading headline, my disappointment is immeasurable, and my day is ruined.
The patient had a genetic condition AND a structural defect in her liver that caused complications. The structural defect was fixed through surfery. The genetic condition wasn't cured and this treatment is of very little utility to other patients that suffer from the genetic condition but not the structural defects in their lymphatic system.